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Newborn Screening Saved Baby Gavin (Pompe)
Baby Gavin was born January 7, 2013. He was 7.9 lbs and 20 in., perfect and healthy. On January 15, 2013, I received a call from a genetic doctor at Childrens Mercy in Kansas City, Missouri that my...
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Timothy’s CHD Story
My name is Sasha Oylear (pronounced Say-sha). I’m married to Mike and we have 2 kids, Christopher (3 1/2) and Timothy (2 years). I was born with a heart murmur but truly had no idea what CHD stood...
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Joey’s Story: CHD
On January 11 of this year I gave birth to our second child, a beautiful little boy. When he was born he was chunky, weighing in at 7 lbs 6 oz, and we were so happy for his big sister to meet him....
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Saved By Newborn Screening: Lucas, cblC
Lucas was a gift that was unexpected. We had an 8 year old daughter and a 5 year old son; my husband and I were almost 40. We thought our baby days had passed. We were overjoyed to have him join our...
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Pulse Ox Screening Saved Jonathan’s Life
Hello my name is Brittany, and my husband’s name is Jake. We would like to share our story about our son. Jonathan Andrew Fuller was born February 22, 2013, and when we discovered he had a heart...
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SBTS Advisor Ruth Caruthers Advocates for Babies
If you would have asked me three years ago if I thought I would be traveling to advocate newborn screening, I would have laughed. “Nahhhh”, I would have said, “I’m not important enough to do that.”...
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Newborn Screening: A Lifetime of Impact from a Simple Heel Stick
Purpose Newborn screening (NBS) is a state-required test in which blood is collected and analyzed for specific genetic, metabolic, hormonal and other disorders. If a disorder exists, life saving...
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NBS Blood Spots in California
More people are becoming aware of Newborn Screening, but most new parents do not think about what happens to the spots after the screening takes place. In California, 6 spots of blood are taken from...
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Michelle Leeker Advocates for Newborn Screening
Michelle Leeker is the mother of Trevor Leeker (Krabbe Disease), Kansas Newborn Screening Advisory Council member, and Baby’s First Test 2013 Consumer Task Force Member. In an effort to raise newborn...
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Paddle For Kids: most anticipated paddle race event of the year
Event Date: May 24, 2014 Races start at 9a.m. City: Safety Harbor Event website: www.paddleforkids.com Location: Safety Harbor Waterfront Park, 110 Veterans Memorial Ln, Safety Harbor, FL 34695 Paddle...
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